Date of Paper/Work


Type of Paper/Work

Systems Change Project

Degree Name

Doctor of Nursing Practice



First Advisor

Nanette Hoerr


In healthcare, creating value by improving quality while containing cost continues to challenge patients, providers, payers, politicians, and the public. Embedding clinical practice guidelines into the electronic health record has been suggested to standardize best practice and improve patient satisfaction and outcomes. Limited published studies have demonstrated whether clinical practice guidelines embedded into the EHR improve outcomes for persons with muscular dystrophy. Sixty muscular dystrophy patients participated in this quantitative study by completing three psychosocial patient-reported outcome measure surveys exploring quality of life, patient activation, and depression risk screening. This research explored the feasibility of collecting this patient data during routine scheduled clinic appointments. Participant’s responded to three process evaluation questions; length of time, relative ease to complete, and location when completed. Data analysis using SPSS summarized demographics; survey scores, and

correlations between time, ease, and location. Collection of patient-reported outcomes data was found to take approximately ten minutes, relatively easy to complete, and survey scores were available to the healthcare team at the time of the neuromuscular specialty clinic visit. The electronic health record was modified to accommodate data entry and retrievability. While this study successfully demonstrated initial exploration of capturing psychosocial outcomes within the electronic health record, additional health related measures selected from the muscular dystrophy clinical practice guidelines still need to be implemented.