Date of Paper/Work

5-2018

Type of Paper/Work

Systems Change Project

Degree Name

Doctor of Nursing Practice

Department

Nursing

First Advisor

Gwen Short

Department/School

Doctor of Nursing Practice

Abstract

Problem: Hematopoietic Stem Cell Transplant (HCT) is associated with high rates of infertility in both men and women of childbearing age. There are barriers to providing fertility preservation and future family planning education despite the national guidelines that all patient should be informed about these options. HCT patients undergo treatment regimens that result in life changing consequences affecting the patient’s future quality of life (QOL). Barriers can be multifaceted as it relates to the urgency of treatment, risk of mortality, acuity of disease, financial implications communication with health professionals and social, emotional or cultural considerations. Patients and caregivers would like to receive as much information as possible, which is a challenge for patients and families during times of acute distress. The topic of fertility, fertility preservation and future family planning options requires a personal and emotionally driven conversation. It can be challenging for a patient to advocate for themselves to promote the discussion of fertility preservation with a physician or caregiver. Additionally, physicians need education and skills to discuss fertility preservation with their patients.

Purpose: The purpose of this doctoral quality improvement project is to develop a self-directed e-learning educational tool for patients and caregivers on fertility preservation and future family planning options.

Projected Outcomes: Research is limited on HCT patients’ self-assessed knowledge of fertility risk, fertility preservation, and options for their future family planning before and after HCT. After dissemination of this educational resource, an evaluation of patient-related outcomes will be completed to determine the effectiveness of a patient-centered web-based education on communication, self-advocacy, and shared decision-making for this population. In addition, the information gained from the development and a quality assurance process will help direct future e-learning education.

Available for download on Friday, May 15, 2020

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