Date of Paper/Work


Type of Paper/Work


Degree Name

Master of Arts in Occupational Therapy


Occupational Science/Occupational Therapy

First Advisor

Paula Rabaey

Second Advisor

Mary Hearst

Third Advisor

Kate Barrett


Occupational Science/Occupational Therapy


This study examined the lived experience of caregivers of children with disabilities in a sub district of Lusaka, Zambia, providing an in-depth description of some of their daily struggles and strengths. This study aimed to explore experiences of stigma and discrimination from the caregiver perspective that impacted their occupation of caregiving. This research was conducted using the photovoice methodology. Five participants photographs were used in conjunction with photo-elicitation interviews to develop themes. These caregivers identified the need for equality for children with disabilities, challenges from caregiving, caregiver qualities that support caregiving, and areas of need for advocacy and change within their community.