Date of Paper/Work

10-2019

Type of Paper/Work

Thesis

Degree Name

Master of Arts in Occupational Therapy

Department

Occupational Science/Occupational Therapy

First Advisor

Paula Rabaey

Second Advisor

Mary Hearst

Third Advisor

Kate Barrett

Department/School

Occupational Science/Occupational Therapy

Abstract

This study examined the lived experience of caregivers of children with disabilities in a sub district of Lusaka, Zambia, providing an in-depth description of some of their daily struggles and strengths. This study aimed to explore experiences of stigma and discrimination from the caregiver perspective that impacted their occupation of caregiving. This research was conducted using the photovoice methodology. Five participants photographs were used in conjunction with photo-elicitation interviews to develop themes. These caregivers identified the need for equality for children with disabilities, challenges from caregiving, caregiver qualities that support caregiving, and areas of need for advocacy and change within their community.

Available for download on Saturday, October 01, 2022

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